© CNRS Photothèque - Philippe PLAILLY & Jérôme CHATIN
The contemporary development of next generation sequencing (NGS) of the genome, along with the possibility to manage massive amounts of data on patients, is profoundly transforming public health. It poses new problems related to patients’ privacy, medical data access and sharing, and finally healthcare government.
Epidapo (Epigenetics, Data, Politics) proposes to investigate the mechanisms by which data sets are added to data sets, as if there were no limit to this additivity of information on patients, when it used to be so difficult, often impossible, to standardize or integrate different data coming from different systems or organizations. We want to understand how a setting very close to “big data”, usually associated with the internet and consumer knowledge, is formatted and transforms biomedicine. One of our main foci is the development of the new field of epigenetics, that inherently mixes genomic data with environmental surveys and many other data resources. We finally explore the political consequences of this new kinds of data on the healthcare system and its modes of government.
Epidapo (Epigenetics, Data, Politics), a joint unit of the the French CNRS (Centre National de la Recherche Scientifique) and UCLA, located within the latter, and housing social and life scientists, proposes to study the UDN from a sociological point of view. Our approach will synergize questions coming from Sociology and Science and Technology Study, with innovative research methods, and a group of world class experts.
Michel Dubois is a CNRS Senior Research Fellow recently appointed as Epidapo Deputy Director. He received his PhD in 1997 and habilitated in 2008 at Paris Sorbonne University. He is teaching and publishing mainly on issues of sociology of science and technology, epistemology and methodology of social research, sociological history and theory. His most recent publications address issues at the crossroads between sociology and biomedical sciences. Michel Dubois is the managing editor of the European Journal of Sociology and member of the editorial board of the Revue Française de Sociologie. He has been an active member of the French National Scientific Committee (CoNRS) between 2012 and 2016.
Vanessa Nurock is Associate Professor of Political Theory and Ethics at Paris 8 University and has been recently appointed Associate Research Fellow at Epidapo. Initially trained in philosophy and cognitive science, her research is at the interface between ethics, politics and science. More specifically, her work deals with bioethics understood as two complementary issues-the biological constraints of our moral valuation, and our moral valuation of biology. Her books and articles address issues concerning bioethics, nanoethics, neuroethics, environmental and animal ethics, moral development and education as well as ethics and politics of care and justice.